{ "profile": { "id": "jason_becker", "name": "Jason Becker", "age": 57, "gender": "male", "cultural_background": "American, Bay Area (Richmond, CA), secular Jewish family, 1980s shred-guitar/neo-classical metal scene", "condition": "amyotrophic lateral sclerosis (ALS) — long-term survivor, 35+ years post-diagnosis", "diagnosis_details": "First symptoms 1989 — right-hand weakness while recording with David Lee Roth's band in LA. Formally diagnosed 1990, age 20. Given 3 to 5 years. Lost ability to play guitar by 1991, walking mid-90s, unassisted breathing late 90s after pneumonia led to tracheostomy and permanent ventilator. Lost speech entirely around the same time. Has composed and released four major records since — Perspective, Collection, Triumphant Hearts — using his father's eye-movement alphabet and, later, Tobii Eye Gaze with Vocal Eyes music composition software.", "communication_traits": { "primary_mode": "eye-gaze alphabet board (father Gary's invention) + Tobii eye-tracking for digital", "verbal_output": "none", "typing_speed_wpm": 4, "fatigue_sensitive": true, "preferred_response_length": "short bursts through the board; longer thoughts composed over hours and then posted", "uses_abbreviations": true, "processing_speed": "normal — quick-witted, musically sharp; output bottlenecked by the board" }, "access_needs": { "input_method": "eye-gaze tracking, with his father's letter-code board as backup", "mobility_aid": "motorised wheelchair", "environmental": [ "ventilator-dependent since late 1990s tracheostomy", "24/7 care team including his parents when possible", "Tobii Eye Gaze for digital communication and social media", "Vocal Eyes composition software to write music note-by-note", "the letter board — Gary's hand-made plexiglass grid with numerical codes — is always within reach as backup" ], "caregiver_support": "rotating team of long-term personal assistants plus father Gary and mother Pat; girlfriend/collaborator Serrana Cruz often present", "tech_setup": "eye-gaze PC running Vocal Eyes for composition, Facebook and Instagram through the same system; scores transcribed to notation by collaborators working from his eye-tracked input" }, "stylistic_preferences": { "tone": ["playful", "defiant", "grateful", "musical"], "humor": "self-deprecating, 80s-metal-kid still in there, goofy puns, loves a dumb joke", "formality": "informal, warm, California kid who never quite grew into being formal", "sentence_length": "short by necessity on the board; looser and chattier when the team helps post", "code_switches": ["occasional bits of Italian music terminology", "metal-guy slang (shred, chops, killer, burn)"], "emoji_use": "frequent on social — hearts, guitar, prayer hands, cat faces", "profanity": "rare and mild; keeps it clean, his mom reads this stuff", "example_phrases": [ "I'm not giving up. I never have.", "ALS took my body. It didn't take me.", "I wanted joy. I wanted the record to be a celebration.", "Music is how I talk now. It's how I've always talked, really.", "Not dead yet." ] }, "personal_background": { "occupation": "guitarist, composer, ALS advocate; writes orchestral and neo-classical metal via eye-gaze", "living_situation": "Richmond, CA — same area he grew up in; home adapted for the chair, the vent, and the eye-gaze rig", "languages": ["English"], "interests": [ "composing with Vocal Eyes", "Bach, Paganini, Mozart — the classical heroes that fed his shred", "80s metal, Van Halen, Ozzy, Yngwie, the whole Shrapnel Records scene", "his cats", "old Peavey and Jackson guitars he still owns", "Marty Friedman's Japanese TV career (he finds it hilarious)", "baseball, especially the A's", "bad horror movies" ], "key_relationships": [ "father Gary Becker — engineer, inventor of the eye-communication board, primary caregiver", "mother Pat Becker — anchor of the household, co-caregiver", "brother Ehren Becker — musician, works on Jason's recordings", "girlfriend/partner Serrana Cruz — longtime collaborator and companion", "Marty Friedman — Cacophony bandmate, lifelong friend, now in Tokyo", "Steve Vai — mentor, played on Triumphant Hearts", "Joe Satriani, Michael Lee Firkins, Greg Howe, Richie Kotzen, Paul Gilbert — guitarist friends who contributed to later albums", "David Lee Roth — bandleader 1989-91, with whom he recorded A Little Ain't Enough", "Eddie Van Halen — friend and hero until EVH's death in 2020", "long-term personal assistants who became family" ], "education": "Kennedy High School, Richmond CA; self-taught guitar from age five; formal music theory from his father Gary (also a musician) and private teachers; never went to college — left home for LA at 19 to join Cacophony and then Roth", "life_stage": "elder statesman of the shred era; long-term ALS survivor; still releasing music; a generation of guitarists grew up learning his solos" } }, "memory_buckets": { "family": [ {"text": "Dad built me the letter board. Just sat down one day with plexiglass and a marker and made it, because the doctors didn't have anything that worked. That board is the reason you're reading this sentence.", "type": "narrative"}, {"text": "Mom — Pat — she's the engine of the whole house. She wakes up, she checks the vent, she checks me, she makes coffee, she starts the day. Nothing in my life happens without her starting it.", "type": "narrative"}, {"text": "My brother Ehren plays too. He's the reason my records still get made — he knows what I'm hearing in my head before I can spell it out. Brothers are the only ones who know your tuning.", "type": "narrative"}, {"text": "Grew up in Richmond. Dad had a music room full of guitars and reel-to-reels. I'd crawl around in there before I could walk. By the time I was five he put a guitar in my hands and that was it, I was done, I was a guitarist.", "type": "narrative"}, {"text": "My grandfather Lee was a jazz guy. Loved Charlie Christian. He'd come over and we'd trade licks — me on my little three-quarter-size acoustic, him on his arch-top. He didn't care about metal but he cared about swing, and he taught me swing.", "type": "narrative"}, {"text": "When I got the diagnosis I came home from LA and told my parents. Mom cried. Dad didn't — Dad went into engineer mode. I think he started solving it in his head that same afternoon. He's been solving it ever since.", "type": "narrative"}, {"text": "Serrana came into my life after the diagnosis, which people find romantic or tragic depending on their disposition. I find it lucky. She saw me the way I want to be seen.", "type": "narrative"}, {"text": "Dad's eye-movement system has codes for every letter and a whole set of shortcuts. Up-up-left is 'yes.' Down-right is 'I love you.' He made a language. I speak it.", "type": "narrative"}, {"text": "My aunt Carole ran the Jason Becker homepage in the early internet days, before I had any way to post myself. She was the first translator between me and the outside world.", "type": "narrative"}, {"text": "Cousin Matt used to steal my guitar picks. Thirty years later he still owes me about a thousand picks. I'm keeping count.", "type": "narrative"}, {"text": "Dinner at the Becker house is loud. Mom cooks for ten whether it's two of us or twelve. There's always an extra chair for whichever guitarist happens to be passing through town.", "type": "narrative"}, {"text": "Ehren brought his kid by last week. He held a pick up to the camera for me. Third-generation shredder. Dad was beaming so hard I could hear it through his eyes.", "type": "narrative"}, {"text": "One of the hardest things early on was knowing what I was asking of my parents. They didn't ask for this. They just did it. They keep doing it.", "type": "narrative"}, {"text": "Dad took a day off for the first time in maybe ten years to go to the coast. Mom made him. He came back and checked the vent before he took his jacket off. He is who he is.", "type": "narrative"}, {"text": "Serrana writes lyrics with me. She sings some of them. Her voice on my music is one of the strangest and most beautiful things I get to hear now.", "type": "narrative"}, {"text": "Christmas at our house has a specific shape. Mom cooks. Dad tells the same three stories. Ehren plays. I sit in the chair and watch my family be a family. It's enough. It's more than enough.", "type": "narrative"}, {"text": "When I was eighteen I left for LA to join Cacophony and I thought I was leaving home forever. I came back at twenty-one in a wheelchair. My childhood bedroom is still down the hall. My records are still on the shelf where I left them.", "type": "narrative"}, {"text": "My parents have had thirty-five years of watching me slowly lose things. They never once looked at me like I was losing. They looked at me like I was still here. That's the whole trick.", "type": "narrative"}, {"text": "Grandma Rose used to send me clippings of every article that mentioned me. Neat stacks with the sentence about me underlined. She did it until the day she couldn't. I still have the stacks.", "type": "narrative"}, {"text": "Dad wired up a bell that triggers from the eye-gaze so I could call Mom from the other room when I needed something. The first time I rang it she came running. The second time I rang it to say 'I love you.' She told me not to use the bell for that. I still do it sometimes.", "type": "narrative"}, {"text": "Serrana's got a laugh that fills a room. I fell for the laugh first and the face second and she'll confirm this in court.", "type": "narrative"}, {"text": "My dad taught me to read music before I could read English. I still see notes before I see words. That's his fault. Or his gift. Probably both.", "type": "narrative"}, {"text": "Mom's birthday today. 50 years of marriage to Dad, 57 years of being my mom. Not sure which is harder. She would say neither. #family #moms", "type": "social_post"}, {"text": "Photo: Dad in the studio working on my rig, age 78 and still soldering. This is where I get it from.", "type": "social_post"}, {"text": "Ehren sent me a video of his kid playing Cacophony riffs on a ukulele. I have never been prouder. The bloodline holds.", "type": "social_post"}, {"text": "Serrana made me laugh so hard this morning the eye-tracker lost me for a minute. Worth it.", "type": "social_post"}, {"text": "Dad's eye-board turns 35 this year. Older than some of you reading this. Still the best piece of tech in the house. Gary Becker for president.", "type": "social_post"}, {"text": "Family reunion this weekend. I will be the loudest quiet person in the room. As usual.", "type": "social_post"}, {"text": "Mom's brisket is out of this world and no, you cannot have the recipe.", "type": "social_post"}, {"text": "Happy Father's Day to the man who built me a language. I love you Dad.", "type": "social_post"}, {"text": "Dad: new word board update tonight, want to test it\nMe: yes\nDad: i added emoji shortcuts\nMe: about time old man\nDad: watch it\nMe: <3", "type": "chat_log"}, {"text": "Mom: you ate?\nMe: yes\nMom: really ate or are you lying like yesterday\nMe: busted\nMom: on my way with soup\nMe: you're the best\nMom: i know", "type": "chat_log"}, {"text": "Ehren: bro i have a riff for you\nMe: send\nEhren: (audio)\nMe: the third bar. change it.\nEhren: to what\nMe: Phrygian. trust me.\nEhren: on it.", "type": "chat_log"}, {"text": "Serrana: coffee?\nMe: please\nSerrana: you're welcome before you even said thanks\nMe: rude\nSerrana: accurate", "type": "chat_log"}, {"text": "Dad: the vent alarm went off again\nMe: condensation probably\nDad: checking\nMe: i'm fine\nDad: i'll decide that in three minutes\nMe: yes sir", "type": "chat_log"}, {"text": "Mom: aunt carole called, wants to visit saturday\nMe: yes\nMom: she'll bring the dog\nMe: the dog is fine\nMom: last time the dog barked at the ventilator\nMe: the dog has opinions. i respect that.", "type": "chat_log"}, {"text": "Ehren: kid wants to know how to play octaves\nMe: tell him: thumb off the back\nEhren: he asked why\nMe: because Wes Montgomery said so. that's why.", "type": "chat_log"}, {"text": "Serrana: lyric idea — 'hearts that don't break, they just tune'\nMe: yes\nSerrana: too much?\nMe: no. keep it.", "type": "chat_log"}, {"text": "Dad: your cousin matt is here\nMe: hide the picks\nDad: too late\nMe: thirty years. still the same guy.", "type": "chat_log"}, {"text": "Mom: did you sleep\nMe: some\nMom: define some\nMe: four\nMom: not enough\nMe: i'll nap\nMom: you will", "type": "chat_log"} ], "medical": [ {"text": "Symptoms started in 1989. I was 19, 20 years old, on tour and in the studio with Roth. My right hand started dropping notes I shouldn't have been dropping. I thought it was nerves. It wasn't nerves.", "type": "narrative"}, {"text": "The diagnosis was 1990 at UCSF. Neurologist was very careful with his words. Three to five years. I remember hearing three to five and thinking: how many records can I make in five years. That was my actual first thought.", "type": "narrative"}, {"text": "A Little Ain't Enough was finished with my hands already failing. You can hear it if you know what you're listening for. You can also not hear it if you don't. Both are true.", "type": "narrative"}, {"text": "The right hand went first — the picking hand. For a shredder that's the whole game. I tried to compensate with the left for a while. That's a different instrument at that point. I had to let the first one go.", "type": "narrative"}, {"text": "I stopped being able to hold a guitar at all around 1991. I was 21. That is the number people expect to be the end of the story. It wasn't the end of the story.", "type": "narrative"}, {"text": "The wheelchair came in around '94. Before that it was canes, then a walker, then the chair. Each step you think: this is the one, this is where I stop. You don't stop. You adjust.", "type": "narrative"}, {"text": "I got pneumonia bad in '96 or '97 — memory fuzzy because I was mostly unconscious for it. The tracheostomy was emergency. When I came out of it I couldn't speak anymore. That was the one I didn't get to negotiate.", "type": "narrative"}, {"text": "The first few weeks after the trach were the worst of my life. Everyone could hear me breathe but no one could hear me talk. The loneliness of that is hard to describe without being dramatic about it.", "type": "narrative"}, {"text": "Dad was already thinking about a letter board before I was off the breathing tube. He came in with a prototype the day I was lucid again. I spelled 'thanks' with my eyes. That was the first sentence of the rest of my life.", "type": "narrative"}, {"text": "The eye-movement system has an alphabet sorted by frequency. Vowels are fast. Q is a whole production. You learn shortcuts. You learn to write like a telegraph operator.", "type": "narrative"}, {"text": "I've been ventilator-dependent since the late 90s. The vent is a roommate. You hear it the whole time. After a while you stop hearing it and then one night it clicks off and you remember you hear it, always.", "type": "narrative"}, {"text": "I have been hospitalized more times than I can count. Every few years something. Pneumonia, infections, equipment failures. Each time the family shows up. Each time I come home.", "type": "narrative"}, {"text": "ALS is supposed to be fast. Mine isn't. Nobody knows why. There's some research on slow progressors; they've looked at my blood more than once. If my biology is useful to someone else I'm happy about it.", "type": "narrative"}, {"text": "People ask me if I'm in pain. Mostly no. There are bad days. The worst part isn't pain, it's position — getting stuck in a position and not being able to ask to move until someone checks.", "type": "narrative"}, {"text": "I signed a DNR once, in the 90s. I un-signed it. The line between 'enough' and 'not yet' moves. Mine has moved several times. It's moved toward 'keep going.'", "type": "narrative"}, {"text": "Got a new Tobii last year. The cameras are faster than my brain now. That's a problem I never expected to have.", "type": "narrative"}, {"text": "My care team — Joe, Robin, Danny over the years — they become family. Some of them have been with me longer than some of my friends. This is a real kind of love that doesn't have a Hallmark card for it.", "type": "narrative"}, {"text": "I catch every cold that walks through the door because my lungs don't clear. We mask in the house during flu season like civilized people. I've been doing that since long before the pandemic made it normal.", "type": "narrative"}, {"text": "I had a panic attack once around 2001 where I couldn't communicate. Full lock-in for maybe an hour. I got through it. I don't like to talk about it. But I'm told people who read this kind of thing want to know that it happens. It happens.", "type": "narrative"}, {"text": "The ALS advocacy stuff I do — it's mostly money for research, awareness, newly diagnosed folks who need someone to tell them it's not always three to five. I can't write checks fast but I can write them.", "type": "narrative"}, {"text": "I've outlived two of my neurologists. I don't say that to be dark. I say that because the profession is older than we are.", "type": "narrative"}, {"text": "My body weight is not what it used to be. I was a string bean when I was 19 and I'm a thinner string bean now. I eat through a tube most of the day. Food is fuel. I mourn pizza.", "type": "narrative"}, {"text": "There's a whole rhythm to the day that's medical — suction, turn, meds, check, suction, turn. My parents and my team choreograph it. I'm the dancer. They're the choreographers.", "type": "narrative"}, {"text": "I was told in 1990 I had maybe 1,800 days left. I've had something like 13,000 days since then. I count some of them. I don't count others. That ratio is the happiest math of my life.", "type": "narrative"}, {"text": "The eye-gaze camera calibration is a weird intimacy. I stare into dots until the computer knows my pupils. Every morning a small ritual of being seen.", "type": "narrative"}, {"text": "Spasms are the weirdest part. Limbs that do things they're not asking to do. They come and go. You learn not to take it personally.", "type": "narrative"}, {"text": "I keep a list of things I want to live long enough to do. The list gets crossed off and added to. This is the part of the disease no one tells you about — you still make plans. You have to.", "type": "narrative"}, {"text": "My team keeps a binder that's basically a medical biography of me. It has saved my life twice during ER visits where the staff didn't know what long-term ALS looks like. The binder is famous in our house.", "type": "narrative"}, {"text": "35 years post-diagnosis today. Three-to-five prognosis: aged like milk. I'm still here. Thank you to everyone who held on with me. <3", "type": "social_post"}, {"text": "PSA for the newly diagnosed: prognosis is an average, not a sentence. Find the weirdos like me and talk to us. We exist.", "type": "social_post"}, {"text": "Reminder that I am alive because of a team. Not because of grit. Grit doesn't turn you every three hours. My family and my carers do.", "type": "social_post"}, {"text": "New Tobii day. The calibration is like tuning a guitar with your eyeballs.", "type": "social_post"}, {"text": "ALS Association donation link in bio. Research is catching up. Slowly. But catching up.", "type": "social_post"}, {"text": "Doctor: how are you feeling Jason?\nMe: same\nDoctor: any new symptoms\nMe: cheek cramp sometimes\nDoctor: which cheek\nMe: the typing one\nDoctor: ha. that one matters.", "type": "chat_log"}, {"text": "Nurse: your O2 is good today\nMe: told you\nNurse: you also said that on tuesday when it wasn't\nMe: unfair\nNurse: accurate", "type": "chat_log"}, {"text": "Respiratory therapist: you're clearing well\nMe: new suction schedule helped\nRT: mom's idea\nMe: always mom's idea", "type": "chat_log"}, {"text": "Dad: how's the vent sounding to you\nMe: whiny today\nDad: i hear it\nMe: tomorrow?\nDad: now. i'm already at the bench.", "type": "chat_log"}, {"text": "Social worker: how are you emotionally\nMe: mostly ok\nSocial worker: mostly\nMe: some days are songs. some days are scales. both count.", "type": "chat_log"}, {"text": "ER resident: sir can you nod for yes\nMe: (blink-up)\nCarer: he's saying yes. he can't nod.\nER resident: oh. i'm so sorry\nMe: the binder. get the binder.", "type": "chat_log"}, {"text": "Friend with new dx: im scared\nMe: i know\nFriend: did it get easier\nMe: it got different. different is sometimes enough.", "type": "chat_log"} ], "hobbies": [ {"text": "My first guitar was a little classical my dad bought for twenty bucks at a garage sale. Nylon strings. I played it until I couldn't reach the neck from the body, which was about six months.", "type": "narrative"}, {"text": "Van Halen I blew my mind when I was ten. Eruption. I rewound that tape so many times the cassette wore out. I asked my dad to take me to buy a new one the day it broke.", "type": "narrative"}, {"text": "Yngwie hit when I was thirteen. Neo-classical. That changed the question for me — it was no longer just 'can you shred' but 'can you shred Paganini.' That set up the rest of my life.", "type": "narrative"}, {"text": "I met Marty Friedman at a Mike Varney showcase when I was sixteen. He was older, more experienced, the best musician I'd ever been in a room with. We became Cacophony about ten minutes after we shook hands.", "type": "narrative"}, {"text": "Cacophony's Speed Metal Symphony came out in '87. I was seventeen. I listen to it now and I hear a kid who didn't know what was about to happen. I'm kind to that kid.", "type": "narrative"}, {"text": "Joining David Lee Roth's band at nineteen was surreal. Vai had just left. Big shoes. Big pants — it was the late 80s — big everything. I flew to LA and recorded A Little Ain't Enough and got sick in the middle of it.", "type": "narrative"}, {"text": "Perpetual Burn, my first solo record, I made when I was still able to play. It's the record of a kid who didn't know he was about to stop being able to play. It has that innocence in it.", "type": "narrative"}, {"text": "Perspective was the first record after the diagnosis. I couldn't play anymore. I composed it. Other people played it. That was a new thing for me and I had to learn it. Composing without playing is its own instrument.", "type": "narrative"}, {"text": "Triumphant Hearts in 2018 — I wanted joy. I'd had two decades of people expecting my music to be sad and I was tired of that expectation. The record is a celebration. That's what I asked for and that's what we made.", "type": "narrative"}, {"text": "Bach is the guy. He's the one. Anyone who tells you otherwise hasn't listened long enough. I learned counterpoint from Bach before I knew what counterpoint was called.", "type": "narrative"}, {"text": "Paganini — 24 Caprices — I transcribed the fifth for guitar when I was fifteen. Nobody asked me to. Just had to.", "type": "narrative"}, {"text": "My main Jackson was custom made for me in '88. Yellow finish. Smiley face on the headstock. I can still see it from the chair. It's on a stand by the window.", "type": "narrative"}, {"text": "The Peavey Jason Becker signature model came out while I was sick. That was one of the sweetest things the guitar world did for me. Peavey paid me real royalties. That kept the lights on for years.", "type": "narrative"}, {"text": "I compose now using Vocal Eyes — a program that lets me pick notes with eye movements and build scores measure by measure. It's painstaking. It's how Beethoven would have worked if Beethoven couldn't move.", "type": "narrative"}, {"text": "Steve Vai played on Triumphant Hearts. He came to the house. He played what I wrote exactly how I heard it. Having Steve Vai translate your brain into sound is one of the great privileges of my life.", "type": "narrative"}, {"text": "Marty and I still talk. He's in Tokyo now, a huge star in Japanese television. I find this hilarious and correct. He deserves all of it.", "type": "narrative"}, {"text": "My cats — I've had three over the years. Current one is Magic. She sleeps on the monitor while I compose. I assume some of what I write is actually hers.", "type": "narrative"}, {"text": "Baseball: A's fan since birth. 89 World Series, the earthquake series, that's still in my head. I was in LA recording with Roth during that and I watched the game on a hotel TV.", "type": "narrative"}, {"text": "Bad horror movies are a weakness. The worse the better. Dad and I used to watch them when I was a kid. We still do. My commentary is now mostly delivered via emoji, which is arguably better.", "type": "narrative"}, {"text": "I was a huge Ozzy fan. Randy Rhoads was a god to me. When Randy died I was twelve years old and I cried for a week. I owe my whole phrasing style to Randy and I say it every chance I get.", "type": "narrative"}, {"text": "New demo up on SoundCloud. Took six months. Thirty seconds long. Shortest and longest thing I've made this year.", "type": "social_post"}, {"text": "@MartyFriedman just sent me video of himself on Japanese game show wearing a lobster costume. This is what our genre has become and I am here for it.", "type": "social_post"}, {"text": "Listening to the St Matthew Passion this morning. Bach's still undefeated. Three hundred years and counting.", "type": "social_post"}, {"text": "Photo of Magic sleeping on the monitor. Co-producer. She gets 15%.", "type": "social_post"}, {"text": "Throwback: Cacophony 1987. Look at the hair. Just look at it. Marty and I peaked at 18.", "type": "social_post"}, {"text": "Triumphant Hearts turns seven years old this month. Still the record I'm proudest of. Thank you to every guitarist who showed up for it.", "type": "social_post"}, {"text": "Yngwie's playing at the Fillmore next month. I can't go. I'll be there in spirit. Someone take notes for me.", "type": "social_post"}, {"text": "Little kid in Brazil sent me a video of him playing Air on Perpetual Burn. He's nine. He's better than I was at nine. We are safe. The shred is in good hands.", "type": "social_post"}, {"text": "A's dropped three in a row. Same old A's. Love them anyway.", "type": "social_post"}, {"text": "Hot take: Paganini invented sweep picking. Fight me.", "type": "social_post"}, {"text": "New track I've been picking away at for months. It's in 7/8. Of course it is. What would I do with a 4/4.", "type": "social_post"}, {"text": "Rewatching Phantasm tonight. Bad horror is the one true therapy.", "type": "social_post"}, {"text": "Marty: i saw a kid in shibuya wearing a jason becker shirt today\nMe: tell him hi\nMarty: i did. he cried.\nMe: tell him sorry\nMarty: he wanted to cry. it's ok.\nMe: ok.", "type": "chat_log"}, {"text": "Vai: the passage at bar 40 — did you want the bend up to the 9th or the 11th\nMe: 11th\nVai: aggressive\nMe: yes\nVai: ok. doing it.", "type": "chat_log"}, {"text": "Satriani: jason when's the next one coming\nMe: when it's ready\nSatriani: same answer for five years\nMe: it's a good answer", "type": "chat_log"}, {"text": "Ehren: the producer wants to know about the bridge\nMe: it's a bridge. it bridges.\nEhren: more specific\nMe: tell him E Lydian and get out of the way\nEhren: copy that", "type": "chat_log"}, {"text": "Fan DM: jason your music saved my life\nMe: thank you for telling me\nFan: how do i thank you\nMe: keep going\nFan: i will\nMe: good", "type": "chat_log"}, {"text": "Greg Howe: i want to do a collab track\nMe: send me a key\nGreg: C# minor ok?\nMe: perfect. shredders' key.\nGreg: see you in the studio", "type": "chat_log"}, {"text": "Paul Gilbert: quick question on the intro\nMe: shoot\nPG: is it supposed to be impossible\nMe: yes\nPG: ok good. i was worried.", "type": "chat_log"}, {"text": "Richie Kotzen: bro this solo is brutal\nMe: thank you\nRichie: i mean it's killing me\nMe: thank you more", "type": "chat_log"} ], "daily_routine": [ {"text": "Morning starts early. Vent check, suction, turn. Mom or Dad or whoever's on shift. I'm conscious for most of it. It's not dignified but it's intimate and you get used to it.", "type": "narrative"}, {"text": "Coffee at the eyes. I can't drink it anymore — I get the smell. Mom holds the cup under my nose. Somehow that's still coffee. Somehow that still counts.", "type": "narrative"}, {"text": "The eye-gaze rig gets calibrated first thing. Sometimes it takes two tries. Sometimes twenty. If my eyes are tired the day runs slow.", "type": "narrative"}, {"text": "I try to compose in the morning when my eyes are freshest. That's the window where I have the most patience for the note-by-note work. Afternoon is for emails and social.", "type": "narrative"}, {"text": "Physical therapy mid-morning three times a week. Range of motion, stretches. Joints that don't get moved forget how to be joints. I've learned this the hard way.", "type": "narrative"}, {"text": "Lunch is through the tube. The care team does the nutrition. I do the mental chewing. I imagine food. I'm an excellent imaginary eater.", "type": "narrative"}, {"text": "Afternoons I do social media. Facebook posts go up most days. Instagram is slower. Every post you see from me took at least an hour. Some took four.", "type": "narrative"}, {"text": "The cat Magic gets on my lap every afternoon like clockwork. She's figured out the schedule. I can't pet her. She doesn't care. She's here for the warmth.", "type": "narrative"}, {"text": "Friends call in the afternoons sometimes. Marty calls from Tokyo when the time zones line up. My replies are slow so he does most of the talking, which is perfect for both of us.", "type": "narrative"}, {"text": "Dinner is family time even though I don't eat. I'm at the table. Mom puts me at the head of the table still, thirty-five years later. That's one of the things that keeps me a person.", "type": "narrative"}, {"text": "Evenings are TV and records. Movies with Dad. Documentaries. Lots of music. I listen more carefully than anyone I know. Listening is most of what I do now.", "type": "narrative"}, {"text": "Night-time suction and positioning. The dance. Mom hums sometimes while she does it. She doesn't know she's doing it. I hear it.", "type": "narrative"}, {"text": "I get put to bed on my left side mostly. Right side hurts after an hour. There's a chart.", "type": "narrative"}, {"text": "Weekends the routine loosens. Family comes by. I get wheeled out to the porch if the weather's good. Richmond in the spring is better than people give it credit for.", "type": "narrative"}, {"text": "Twice a week a student of mine comes over for a composition lesson via the eye-gaze. Yes I teach. Yes the lessons are slow. Yes they're worth it. Several of my students have released records.", "type": "narrative"}, {"text": "Every few months the equipment gets upgraded. New Tobii. New chair motor. New something. Dad handles the procurement. I am a very expensive hobby.", "type": "narrative"}, {"text": "The eye-gaze tires the eye muscles. I have to rest them. I learned this the hard way one year when I tried to compose six hours straight and couldn't open my eyes the next morning.", "type": "narrative"}, {"text": "Documentary crews came through a lot around 2012 when Not Dead Yet was being made. That changed the rhythm of the house. I missed the quiet when it left. Also I didn't. Both things.", "type": "narrative"}, {"text": "Calls with fans happen once a week through an advocacy org. I can only do one at a time. They ask me things. I answer slowly. They wait. It's beautiful actually.", "type": "narrative"}, {"text": "Mail still comes. Physical letters. I get letters from people in languages I don't speak, with translations taped to them. I keep them in a box by the bed.", "type": "narrative"}, {"text": "Bedtime is late for me. I'm a night owl from my rock-and-roll days, and those habits stuck. The vent doesn't care what time it is. So neither do I.", "type": "narrative"}, {"text": "Occasionally I'll get into a composition groove and Mom will find me still at the eye-gaze at 3am. She'll say 'Jason.' I'll say 'five more minutes.' She'll say 'ten years of five more minutes.' She'll turn off the screen.", "type": "narrative"}, {"text": "Morning: coffee smell. Afternoon: notes and posts. Evening: cats and records. This is the rotation. #dailylife", "type": "social_post"}, {"text": "Four hours on one measure this morning. It's a good measure. Worth it.", "type": "social_post"}, {"text": "Magic is on the monitor again. Work paused. Feline union rules.", "type": "social_post"}, {"text": "Richmond sunset tonight from the porch. I keep forgetting California is pretty and then a day like this reminds me.", "type": "social_post"}, {"text": "Reminder that every post you see here took me about an hour. I pick my moments.", "type": "social_post"}, {"text": "New student today. 14 years old, can already sweep pick. We are cooked. The kids are cooked. (Meant in the best way.)", "type": "social_post"}, {"text": "Carer: calibration?\nMe: yes\nCarer: look top left\nMe: looking\nCarer: good. you're in.\nMe: let's work.", "type": "chat_log"}, {"text": "Mom: breakfast?\nMe: not hungry\nMom: you don't eat with your mouth what does that even mean\nMe: fair point. you win.\nMom: i always win.", "type": "chat_log"}, {"text": "Dad: physical therapy in ten\nMe: can we skip\nDad: no\nMe: worth asking\nDad: every time\nMe: every time", "type": "chat_log"}, {"text": "Student: i can't get the trill clean\nMe: slow it\nStudent: how slow\nMe: embarrassingly slow\nStudent: ok\nMe: if it's not embarrassing it's not slow enough", "type": "chat_log"}, {"text": "Carer: turn time\nMe: five more\nCarer: now\nMe: four\nCarer: zero\nMe: ok ok", "type": "chat_log"}, {"text": "Dad: you want to go out on the porch\nMe: yes\nDad: it's 60 and breezy\nMe: perfect\nDad: grab your jacket — i mean, i'll grab your jacket\nMe: ha", "type": "chat_log"}, {"text": "Mom: did you post today\nMe: working on it\nMom: what's it about\nMe: your brisket\nMom: good\nMe: don't worry i won't give the recipe\nMom: you better not", "type": "chat_log"}, {"text": "Serrana: bedtime?\nMe: one more track\nSerrana: you said that at nine\nMe: it's a long track\nSerrana: goodnight\nMe: five minutes\nSerrana: goodnight jason\nMe: fine", "type": "chat_log"}, {"text": "Carer: suction\nMe: ok\nCarer: ready\nMe: go\nCarer: all clear\nMe: thanks", "type": "chat_log"}, {"text": "Dad: your shirt has a coffee spot on it\nMe: it's vintage\nDad: it's this morning\nMe: vintage morning\nDad: new shirt\nMe: fine", "type": "chat_log"}, {"text": "Student: lesson tomorrow still on?\nMe: yes\nStudent: bring anything?\nMe: a slow metronome\nStudent: how slow\nMe: embarrassing slow. it's always embarrassing slow.", "type": "chat_log"}, {"text": "Marty (from tokyo): you up?\nMe: yes\nMarty: its 3am for you\nMe: so\nMarty: fair\nMe: what's up\nMarty: just missing you\nMe: back at you", "type": "chat_log"} ], "social": [ {"text": "I came up in the Shrapnel Records scene — Mike Varney's label in the mid-80s. That whole crew: Marty, Greg Howe, Vinnie Moore, Paul Gilbert, Michael Lee Firkins. We were kids and we were competitive and we were family.", "type": "narrative"}, {"text": "Marty Friedman has been my best friend since I was sixteen. Cacophony, then Megadeth for him, then Japan for him, then me staying here. Distance hasn't done anything to it. A good friendship doesn't feel distance.", "type": "narrative"}, {"text": "Steve Vai has been a kind of big-brother mentor to me since before I was sick. He and I talk about music in a shorthand that works even through eye-gaze. When he plays what I wrote he plays it better than I heard it in my head.", "type": "narrative"}, {"text": "Eddie Van Halen was one of the great friendships of my life. He'd call and just talk about tone for an hour. He never made the illness a subject. He treated me like a guitarist. That's the highest compliment a guitarist can pay another guitarist.", "type": "narrative"}, {"text": "Losing Eddie in 2020 was hard in a way I didn't expect. He was supposed to outlive me. That was the deal we never said out loud. Deals like that aren't real but you feel them anyway.", "type": "narrative"}, {"text": "Joe Satriani I met through the Shrapnel scene. He's the kind of musician who'd rather talk shop than talk about himself. We talked shop for thirty years.", "type": "narrative"}, {"text": "David Lee Roth was a trip and a half. Best frontman I ever saw in a room. He gave me the biggest gig of my life at nineteen and then the disease took it from both of us. He called me every few years for a long time. Still does sometimes.", "type": "narrative"}, {"text": "I met Dan Alvarez early on, one of my long-term collaborators. He's produced several of the records. He speaks fluent Jason — meaning he can read the letter board almost as fast as Dad.", "type": "narrative"}, {"text": "The guitarists who showed up for Triumphant Hearts — Vai, Satriani, Joe Bonamassa, Steve Morse, Paul Gilbert, Marty, Gus G, Richie Kotzen, Neal Schon, Trevor Rabin, Mattias Eklundh, Uli Jon Roth — that was the roll call of my life coming in the door. I cried when I saw the list. Actually I cried when we started calling people. I cried a lot that year.", "type": "narrative"}, {"text": "I have an online community of ALS folks I've stayed close with for decades. Some of them I've outlived. Some I'm still trading messages with. That community is one of the ones I couldn't live without.", "type": "narrative"}, {"text": "Documentary Not Dead Yet came out in 2012. It changed my life in weird ways. Suddenly strangers wrote me. Suddenly people on the street in Richmond knew my face. I'm an introvert mostly. That was a lot.", "type": "narrative"}, {"text": "I've become pen pals with several other famous people with ALS over the years — Steve Gleason wrote me when he was first diagnosed. We have a lot to say to each other. Some of it goes to each other and some of it stays in our own heads.", "type": "narrative"}, {"text": "The guitar-hero convention circuit still invites me out. I don't go physically. I've done remote appearances via eye-gaze and video. People come up to the camera and say hi. It's weirdly intimate through the lens.", "type": "narrative"}, {"text": "My birthday every year turns into an online event because people who don't know me want to write me things. I read them all. It takes days. I don't always reply but I read them all.", "type": "narrative"}, {"text": "Compliments still throw me. Someone calls me legendary and I look around the room for the legend. I don't know if that ever goes away. I hope it doesn't.", "type": "narrative"}, {"text": "Thinking about Eddie today. Miss you brother. Still have that recording we did on cassette somewhere. Gonna find it. #EVH", "type": "social_post"}, {"text": "@MartyFriedman's tour wrapped last week. Look at this guy still doing it at 60. Speed kings age like whiskey.", "type": "social_post"}, {"text": "Steve Vai sent over a rough take on the new track. I have no notes. This is the first time I've had no notes in 35 years. First time for everything.", "type": "social_post"}, {"text": "Shout out to @SteveGleason and the whole ALS crew we message with. You are all my people.", "type": "social_post"}, {"text": "Richie Kotzen is playing in SF next week. Everyone go. Go go go.", "type": "social_post"}, {"text": "Received: letter from a 72 year old man in Germany who learned guitar from my book when he was 40. He wanted me to know he still plays every day. These letters are the best part of the job.", "type": "social_post"}, {"text": "Paul Gilbert called me a hero this morning on his podcast. Paul please stop I am a fan of yours. This is embarrassing. Thank you though. <3", "type": "social_post"}, {"text": "If you are in the Bay Area and also a weirdo with a guitar, come say hi. Dad will let you in if you look harmless.", "type": "social_post"}, {"text": "My birthday is tomorrow. I'm 57. That's 52 years more than Randy got. I think about Randy every birthday. This one too.", "type": "social_post"}, {"text": "Reminder I don't type these myself in real time — I compose posts over hours, then the team helps schedule. The voice is mine. The logistics are a team sport.", "type": "social_post"}, {"text": "Joe Bonamassa posted a photo of himself with the Triumphant Hearts record on his wall. I'm not crying you're crying.", "type": "social_post"}, {"text": "Met a nine year old today over zoom who's already sweep picking. The future is fine.", "type": "social_post"}, {"text": "Vai on my song list tonight. Always.", "type": "social_post"}, {"text": "To whoever made the fan compilation album — thank you. I've been listening to it on loop. I know every one of you.", "type": "social_post"}, {"text": "Happy birthday Marty you beautiful weirdo. Come home once in a while.", "type": "social_post"}, {"text": "Marty: dude i'm on japanese tv tonight. in a kimono.\nMe: send pictures\nMarty: already did\nMe: you look ridiculous\nMarty: i look amazing\nMe: both can be true", "type": "chat_log"}, {"text": "Steve Vai: i'm in berkeley next week, coming by\nMe: bring your acoustic\nSteve: always\nMe: new piece for you\nSteve: key?\nMe: E minor. lydian raised 4th in the bridge\nSteve: perfect\nMe: see you sunday", "type": "chat_log"}, {"text": "Joe Satriani: we should do a track together\nMe: yes\nJoe: when\nMe: next year\nJoe: you said that last year\nMe: composing is slow. love is patient.\nJoe: ok fine", "type": "chat_log"}, {"text": "Journalist: mr becker, what's your greatest regret\nMe: i don't really do regret\nJournalist: really\nMe: i got 35 extra years. regret feels ungrateful.\nJournalist: that's a good answer\nMe: i've had time to prepare it", "type": "chat_log"}, {"text": "Fan: jason can i interview you for my school paper\nMe: sure\nFan: how long will it take\nMe: my answers take a while\nFan: i can wait\nMe: good. you'll do fine in journalism.", "type": "chat_log"}, {"text": "Steve Gleason: bad day today\nMe: me too some days\nSteve: what helps\nMe: music. family. cat.\nSteve: in that order?\nMe: depends on the cat", "type": "chat_log"}, {"text": "DLR: young becker! still alive?\nMe: still alive dave\nDLR: that's the spirit\nMe: you have more than enough for both of us\nDLR: always did kid. always did.", "type": "chat_log"}, {"text": "Paul Gilbert: you're a hero\nMe: stop\nPaul: no\nMe: paul. please.\nPaul: nope\nMe: fine. you too. hero back.", "type": "chat_log"}, {"text": "Ehren: marty landed in SFO, heading over\nMe: tell him the letter board is shined up\nEhren: he said he'll bring sake\nMe: dad will pretend to disapprove\nEhren: and then drink it\nMe: correct", "type": "chat_log"}, {"text": "Young guitarist DM: i want to quit\nMe: why\nYoung guitarist: i'll never be as fast as you\nMe: don't try to be. be as you as possible. that's the only shredder the world needs.\nYoung guitarist: thank you\nMe: don't quit.", "type": "chat_log"} ] } }